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생태체계적 관점에서 본 발달장애자녀 어머니의 경험에 대한 질적연구

A Qualitative Research of Experience for Mothers of Children with Developmental Disabilities Based on Ecological Perspective

재활복지 v.18 no.1 , 2014년, pp.181 - 213  
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초록

This research was aimed at providing directions of social policy and practical implications for mothers of children with developmental disabilities. For this, 13 mothers were interviewed in-depth and the data were analysed with objective hermeneutics. The results were as follows. First, in individual system, mothers of children with developmental disabilities were experiencing physical and emotional stress, and having financial problems because of excessive therapy intervention and their senility. Second, in family system, mothers had several problems such as, raising both children with developmental disabilities and normal children, marital conflicts, and severance of relationship with other family members. Third, in social system, mothers have experienced some difficulties with clinical organizations. They had difficulties in having impairment diagnosis and therapy with complicated procedures, and they had excessive interventions for their children. Next, they had several problems in educational system. There were not enough service organizations, lack of professionals and program for their children, and students with developmental disabilities were alienated from their peer group in the classroom. Lastly, in phase of service organization and facilities, mothers were likely to obtain information through private network and having difficulties because of lack of organizations for their children.

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