참고문헌 (50)

1. Ministry of Government Legislation (MOLEG). The Korean Law Information Center [Internet]. Sejong: MOLEG; c2021 [cited 2022 Jan 20]. Available from: https://www.law.go.kr/lsTrmSc.do?menuId13&subMenuId65&query. 

2. National Institute of Special Education (NISE). Guide to raising infants with disabilities Volume 1 - Developmental disabilities (parenting knowledge and information) [Internet]. Asan: NISE; c2016 [cited 2022 Jan 20]. Available from: http://www.nise.go.kr/boardCnts/view.do?boardID137&boardSeq242252&lev0&searchTypenull&statusYNW&page4&snise&m010101&opTypeN. 

3. Ministry of Health and Welfare (MOHW). Disabled registration status [Internet]. Sejong: MOHW; c2021 [cited 2021 Jul 22]. Available from: http://www.mohw.go.kr/react/al/sal0301vw.jsp?PAR_MENU_ID04&MENU_ID0403&BOARD_ID140&BOARD_FLAG00&CONT_SEQ365339. 

4. Ministry of Health and Welfare (MOHW). Ministry of Health and Welfare (MOHW). Education manual for parents with developmental disabilities. Volume 1 [Internet]. Sejong: MOHW; c2017 [cited 2022 Jan 20]. Available from: http://www.mohw.go.kr/react/jb/sjb030301vw. jsp?PAR_MENU_ID03&MENU_ID032901&CONT_SEQ338416&page1. 

5. Kim JH, Kang JB, Kim HJ, Kim TY, Lee HS. Disability and life dynamics panel [Internet]. Seoul: Korea Disabled people's Development Institute (KODDI); c2021 [cited 2022 Jan 20]. Available from: https://www.koddi.or.kr/data/research01_view.jsp?brdNum7412305&brdTp&searchParamUrlbrdType%3DRSH%26amp%3BbrdRshYnData%3Ddata%26amp%3Bpage%3D1%26amp%3BpageSize%3D20. 

6. Hwang MK, Lim JS. Factors affecting quality of life of mother with developmental disabilities: Focusing care giving, family function, social capital of families with developmental disabilities. Journal of Future Social Work Research. 2015;6(1):83-113. https://doi.org/10.22836/kaswpr.2015.6.1.83 

   

7. Yoo HK. A study on the factors affecting the qualities of lives in mothers with disabled children in Seoul. Journal of Korean Home Management Association. 2009;27(1):73-88. 

8. Jeon BJ. Relationship among parenting stress, marital communication and quality of life according to gender in parents of children with developmental disability. Korean Journal of Care Management. 2016;20:121-144. 

9. Shim KM. We need to pay attention to the structural problems behind suicide [Internet]. Seoul: Seoul Economy; c2020 [cited 2021 Mar 20]. Available from: https://www.sedaily.com/NewsView/1ZAJ7RRN9T. 

10. Jeon K, Kim S, Kim H, Lee H, Lim B. Life history of the parent's adaptation with challenging behavior of developmental disability child. The Journal of Korean Policy Studies. 2019;19(3):25-45. https://doi.org/10.46330/jkps.2019.09.19.3.25 

    상세보기

11. Ban RK, Luitel I, Regmi K. Evaluating quality of life of parents having a child with disability. Journal of Karnali Academy of Health Sciences. 2020;3(1):1-10. https://doi.org/10.3126/jkahs.v3i1.28455 

    

12. Braden CJ. A test of the Self-Help Model: Learned response to chronic illness experience. Nursing Research. 1990;39(1):42-47. https://doi.org/10.1097/00006199-199001000-00009 

    상세보기

13. Braden CJ. Research program on learned response to chronic illness experience: Self-help model. Holistic Nursing Practice. 1993;8(1):38-44. https://doi.org/10.1097/00004650-199310000-00007 

    상세보기

14. LeFort SM. A test of Braden's Self-Help Model in adults with chronic pain. Journal of Nursing Scholarship. 2000;32(2): 153-160. https://doi.org/10.1111/j.1547-5069.2000.00153.x 

    상세보기

15. Owens B. A test of the self-help model and use of complementary and alternative medicine among Hispanic women during treatment for breast cancer. Oncology Nursing Forum. 2007;34(4):E42-E50. https://doi.org/10.1188/07.ONF.E42-E50 

    상세보기

16. Chuang TH, Lin KC, Gau ML. Validation of the Braden self-help model in women with systemic lupus erythematosus. Journal of Nursing Research. 2010;18(3):206-214. https://doi.org/10.1097/JNR.0b013e3181ed578c 

    상세보기

17. Shin H. The meaning of nurturing experience of developmental disorder children's mother. Family and Culture. 2014; 26(2):80-125. https://doi.org/10.21478/family.26.2.201406.003 

    

18. Baek J. Parenting burden factor exploration and confirmation among parents of children with developmental disabilities: Analysis of direct, indirect and total effect affecting emotional anxiety. Journal of Special Education: Theory and Practice. 2015;16(4):79-100. 

19. Jeon MY, Park HY. Father's involvement in child care and parenting self-efficacy of mothers with developmentally disabled children. Journal of Korean Society of Occupational Therapy. 2011;19(3):23-33. 

20. Lee JM, Koo MH. The effects of positive intervention utilizing signature strengths on life satisfaction, happiness, and parenting effectiveness of developmentally disabled children's mothers. Journal of the Rights of Children with Disability. 2014;5(2):35-53. 

21. Park CG, Jeon MY. A structural equation model on quality of life of mothers of children with attention deficit hyperactivity disorder. Child Health Nursing Research. 2017;23(3):279-291. https://doi.org/10.4094/chnr.2017.23.3.279 

    원문보기 상세보기

22. Bombardier CH, D'Amico C, Jordan JS. The relationship of appraisal and coping to chronic illness adjustment. Behaviour Research and Therapy. 1990;28(4):297-304. https://doi.org/10.1016/0005-7967(90)90081-s 

    상세보기

23. Mishel MH. Perceived uncertainty and stress in illness. Research in Nursing & Health. 1984;7(3):163-171. https://doi.org/10.1002/nur.4770070304 

    상세보기

24. Lin SL. Coping and adaptation in families of children with cerebral palsy. Exceptional Children. 2000;66(2):201-218. https://doi.org/10.1177/001440290006600205 

    상세보기

25. Park ES, Oh WO. Uncertainty, social suppot & powerlessness in mothers of handicapped children. Korean Journal of Child Health Nursing. 1999;5(2):151-166. 

26. Cho IS, Moon KI. Factors affecting the life quality in mothers of children with disabilities. Journal of the Korean Society of Maternal and Child Health. 2016;20(2):119-131. https://doi.org/10.21896/jksmch.2016.20.2.119 

    상세보기

27. Azar M, Badr LK. Predictors of coping in parents of children with an intellectual disability: Comparison between Lebanese mothers and fathers. Journal of Pediatric Nursing. 2010; 25(1):46-56. https://doi.org/10.1016/j.pedn.2008.11.001 

    상세보기

28. Kline RB. Principles and practice of structural equation modeling. 4th ed. New York (NY): The Guilford Press; 2015. p. 1-534. 

29. Abidin RR. Parenting stress index: Professional manual. 3rd ed. Odessa (FL): Psychological Assessment Resources, Inc.; 1995. p. 1-328. 

30. Chung KM, Yang YJ, Jung S, Lee KS, Park JA. Standardization study for the Korean version of Parenting Stress Index Fourth Edition Short Form (K-PSI-4-SF). The Korean Journal of Health Psychology. 2019;24(4):785-807. https://doi.org/10.17315/kjhp.2019.24.4.001 

    상세보기

31. In JY. A study on the uncertainty of mothers of children with convulsive disorders and the family degree [master's thesis]. Seoul: Yonsei University; 1989. p. 1-86. 

32. Gibaud-Wallston J, Wandersman LP. Parenting sense of competence scale [Internet]. Washington, DC: American Psychological Association; c1978 [cited 2021 Mar 20]. Available from: https://psycnet.apa.org/doiLanding?-doi10.1037%2Ft01311-000. 

33. Johnston C, Mash EJ. A measure of parenting satisfaction and efficacy. Journal of Clinical Child Psychology. 1989;18(2): 167-175. https://doi.org/10.1207/s15374424jccp1802_8 

    상세보기

34. Lee AR. A structural model of caring behavior of mothers of disabled children. Journal of Korean Academy of Nursing. 2009;39(5):673-682. https://doi.org/10.4040/jkan.2009.39.5.673 

    원문보기 상세보기

35. Braden CJ. Final report: Learned self-help response to chronic illness experience. Bethesd (MD): National Institute of Nursing Research (NINR); 1993. Report No.: final report for 1 R29 NR0169-01-05. 

36. World Health Organization (WHO). Process of translation and adaptation of instruments [Internet]. Geneva: WHO; 2015 [cited 2015 Mar 13]. Available from: https://www.mhinnovation.net/sites/default/files/files/WHO%20Guidelines%20on%20Translation%20and%20Adaptation%20of%20Instruments.docx. 

37. Min SK, Kim KI, Park IH. Korean version of WHOQOL. Seoul: Hana Medical Corp.; 2002. p. 1-70. 

38. Song TM, Kim GS. Structural equation modeling for health & welfare research. Seoul: Hannarae; 2012. p. 164-165. 

39. Lee JH, Kim HY, Lee JH. A study on maternal stress in rearing children with disabilities and maternal quality of life. Journal of Korean Academy of Child Health Nursing. 2007;13(1):5-12. 

40. Yi JS, Choi YH. The effect of parenting stress and social support on the parenting efficacy of mothers. Korean Journal of Play Therapy. 2010;13(1):19-32. 

41. Kim JK, Shin SY. Maternal caring stress, caring attitude and family resilience of mothers of children with mental retardation. Journal of Intellectual Disabilities. 2012;14(4):105-125. 

42. Jang MN, Kim H. An analysis of factors influencing parenting stress in parents of children with epilepsy. Child Health Nursing Research. 2016;22(3):163-171. https://doi.org/10.4094/chnr.2016.22.3.163 

    원문보기 상세보기

43. Kim HJ, Kim MH, Kim YK, Yu MB, Oh J. A study on mother's perception of uncertainty and nursing need concerning child's hospitalization. Korean Parent-Child Health Journal. 2007;10(2):136-146. 

44. Oh EK, Han JW. A narrative inquiry into the marital adjustment experiences of parents of adults with developmental disabilities. Journal of Future Social Work Research. 2018;9(2):223-258. https://doi.org/10.22836/kaswpr.2018.9.2.223 

    

45. Yoon CY. Practical cases of early identification and support services for developmental delay and emotional behavioral disorder. Korean Journal of Special Education. 2019;12:29-41. 

46. Kan K, Fierstein J, Boon K, Kanaley M, Zavos P, Volerman A, et al. Parental quality of life and self-efficacy in pediatric asthma. Journal of Asthma. 2021;58(6):742-749. https://doi.org/10.1080/02770903.2020.1731825 

    상세보기

47. Han SH, Park SH. A pilot study of program development to improve maternal parenting-efficacy of mothers with autistic children. Journal of the Korean Association for Persons with Autism. 2015;15(1):87-120. 

48. Cho SH, Yun KS. Influence of uncertainty, physiologic risk factors, self-efficacy on self-management in stroke patients. Journal of Muscle and Joint Health. 2016;23(2):114-124. https://doi.org/10.5953/JMJH.2016.23.2.114 

    원문보기 상세보기

49. Jeong K. The relation among uncertainty, social support, care burden of mothers having children with developmental disabilities [master's thesis]. Pocheon: CHA University; 2020. p. 1-67. 

50. Oh WO, Park ES. Uncertainty, self-efficacy & coping in parents' of children with cancer. Korean Journal of Child Health Nursing. 1998;4(2):274-285.