$\require{mediawiki-texvc}$

연합인증

연합인증 가입 기관의 연구자들은 소속기관의 인증정보(ID와 암호)를 이용해 다른 대학, 연구기관, 서비스 공급자의 다양한 온라인 자원과 연구 데이터를 이용할 수 있습니다.

이는 여행자가 자국에서 발행 받은 여권으로 세계 각국을 자유롭게 여행할 수 있는 것과 같습니다.

연합인증으로 이용이 가능한 서비스는 NTIS, DataON, Edison, Kafe, Webinar 등이 있습니다.

한번의 인증절차만으로 연합인증 가입 서비스에 추가 로그인 없이 이용이 가능합니다.

다만, 연합인증을 위해서는 최초 1회만 인증 절차가 필요합니다. (회원이 아닐 경우 회원 가입이 필요합니다.)

연합인증 절차는 다음과 같습니다.

최초이용시에는
ScienceON에 로그인 → 연합인증 서비스 접속 → 로그인 (본인 확인 또는 회원가입) → 서비스 이용

그 이후에는
ScienceON 로그인 → 연합인증 서비스 접속 → 서비스 이용

연합인증을 활용하시면 KISTI가 제공하는 다양한 서비스를 편리하게 이용하실 수 있습니다.

Sustaining care for a parent with dementia: an indefinite and intertwined process 원문보기

International journal of qualitative studies on health and well-being, v.12 suppl.2, 2017년, pp.1389578 -   

Hwang, Amy S. (Rehabilitation Sciences Institute, University of Toronto , Toronto , Ontario , Canada) ,  Rosenberg, Lena (Division of Occupational Therapy, Karolinska Institutet , Huddinge , Sweden) ,  Kontos, Pia (Toronto Rehabilitation Institute, University Health Network , Toronto , Ontario , Canada) ,  Cameron, Jill I. (Rehabilitation Sciences Institute, University of Toronto , Toronto , Ontario , Canada) ,  Mihailidis, Alex (Rehabilitation Sciences Institute, University of Toronto , Toronto , Ontario , Canada) ,  Nygård, Louise (Division of Occupational Therapy, Karolinska Institutet , Huddinge , Sweden)

Abstract AI-Helper 아이콘AI-Helper

ABSTRACTThis study aimed to understand how adult children sustain caring for persons with dementia (PwDs) within their family and formal care contexts in Canada. Half-day focus groups were conducted with adult daughters and adult sons in Toronto, Canada. Using constructivist grounded theory, we exam...

주제어

참고문헌 (44)

  1. Alzheimer’s Society of Canada ( 2015 ). The Canadian Alzheimer’s disease and dementia partnership (pp. 1 – 15 ). Retrieved from http://www.alzheimer.ca/on/~/media/Files/national/Advocacy/CADDP_Strategic_Objectives_e.pdf 

  2. Bartlett R. , & O’Connor D. ( 2007 ). From personhood to citizenship: Broadening the lens for dementia practice and research . Journal of Aging Studies , 21 ( 2 ), 107 – 118 . doi: 10.1016/j.jaging.2006.09.002 

  3. Bastawrous M. ( 2013 ). Caregiver burden - a critical discussion . International Journal of Nursing Studies , 50 ( 3 ), 431 – 441 . doi: 10.1016/j.ijnurstu.2012.10.005 23131724 

  4. Bastawrous M. , Gignac M. A. , Kapral M. K. , & Cameron J. I. ( 2014 ). Factors that contribute to adult children caregivers’ well-being: A scoping review . Health & Social Care in the Community , 23 ( 5 ), 449 – 466 . doi: 10.1111/hsc.12144 25472851 

  5. Brodaty H. , & Donkin M. ( 2009 ). Family caregivers of people with dementia . Dialogues in Clinical Neuroscience , 11 ( 2 ), 217 – 228 . 19585957 

  6. Carbonneau H. , Caron C. , & Desrosiers J. ( 2010 ). Development of a conceptual framework of positive aspects of caregiving in dementia . Dementia , 9 ( 3 ), 327 – 353 . doi: 10.1177/1471301210375316 

  7. Carlsen B. , & Glenton C. ( 2011 ). What about N? A methodological study of sample-size reporting in focus group studies . BMC Medical Research Methodology , 11 ( 1 ), 26 . doi: 10.1186/1471-2288-11-26 21396104 

  8. Chappell N. L. , & Funk L. M. ( 2011 ). Social Support, Caregiving, and Aging . Canadian Journal on Aging/La Revue Canadienne Du Vieillissement , 30 ( 03 ), 355 – 370 . doi: 10.1017/S0714980811000316 

  9. Charmaz K. ( 2014 ). Constructing grounded theory ( 2nd ed.). London: SAGE . 

  10. Connidis I. A. , & Kemp C. L. ( 2008 ). Negotiating actual and anticipated parental support: Multiple sibling voices in three-generation families . Journal of Aging Studies , 22 ( 3 ), 229 – 238 . doi: 10.1016/j.jaging.2007.06.002 

  11. Dupuis S. L. , Gillies J. , Carson J. , Whyte C. , & Genoe R. ( 2012a ). Moving beyond patient and client approaches: Mobilizing “authentic partnerships” in dementia care, support and services . Dementia , 11 , 427 – 452 . doi: 10.1177/1471301211421063 

  12. Dupuis S. L. , Wiersma E. , & Loiselle L. ( 2012b ). Pathologizing behavior: Meanings of behaviors in dementia care . Journal of Aging Studies , 26 ( 2 ), 162 – 173 . doi: 10.1016/j.jaging.2011.12.001 

  13. Egdell V. ( 2012 ). Development of support networks in informal dementia care: Guided, organic, and chance routes through support . Canadian Journal on Aging/La Revue Canadienne Du Vieillissement , 31 ( 04 ), 445 – 455 . doi: 10.1017/S0714980812000323 

  14. Guberman N. , Lavoie J. P. , Blein L. , & Olazabal I. ( 2012 ). Baby boom caregivers: Care in the age of individualization . The Gerontologist , 52 ( 2 ), 210 – 218 . doi: 10.1093/geront/gnr140 22298745 

  15. Hallberg L. R.-M. ( 2006 ). The “core category” of grounded theory: Making constant comparisons . International Journal of Qualitative Studies on Health and Well-Being , 1 ( 3 ), 141 – 148 . doi: 10.1080/17482620600858399 

  16. Hassink W. H. J. , & van den Berg B. ( 2011 ). Time-bound opportunity costs of informal care: Consequences for access to professional care, caregiver support, and labour supply estimates . Social Science & Medicine , 73 ( 10 ), 1508 – 1516 . doi: 10.1016/j.socscimed.2011.08.027 21982632 

  17. Health Quality Ontario ( 2016 ). The reality of caring . Toronto : Queen’s Printer for Ontario . 

  18. Hollander M. J. , Liu G. , & Chappell N. L. ( 2009 ). Who cares and how much? The imputed economic contribution to the Canadian healthcare system of middle-aged and older unpaid caregivers providing care to the elderly . Law & Governance , 12 ( 2 ), 42–49. 

  19. Kitzinger J. ( 1994 ). The methodology of focus groups: The importance of interaction between research participants . Sociology of Health & Illness , 16 ( 1 ), 103 – 121 . doi: 10.1111/1467-9566.ep11347023 

  20. Kitzinger J. ( 1995 ). Introducing focus groups. [Electronic version] . British Medical Journal . doi: 10.1136/bmj.311.7000.299 

  21. Kontos P , Grigorovich A , Kontos A , & Miller K.-L. ( 2016 ). Citizenship, human rights, and dementia: towards a new embodied relational ethic of sexuality . Dementia: The International Journal Of Social Research And Practice , 15 ( 3 ), 315 – 329 . doi: 10.1177/1471301216636258 

  22. Kontos P , Miller K-L , & Kontos A ( 2017 ). Relational citizenship: supporting embodied selfhood and relationality in dementia care . Sociology Of Health & Illness , 39 562 – 198 , 39 562 – 198 . doi: 10.1111/1467-9566.12453 

  23. Lehoux P. , Poland B. , & Daudelin G. ( 2006 ). Focus group research and “the patient’s view” . Social Science & Medicine , 63 , 2091 – 2104 . doi: 10.1016/j.socscimed.2006.05.016 16797811 

  24. Lilly M. B. , Robinson C. A. , Holtzman S. , & Bottorff J. L. ( 2011 ). Can we move beyond burden and burnout to support the health and wellness of family caregivers to persons with dementia? Evidence from British Columbia, Canada . Health & Social Care in the Community , 20 ( 1 ), 103 – 112 . doi: 10.1111/j.1365-2524.2011.01025.x 21851447 

  25. Lingler J. H. , Sherwood P. R. , Crighton M. H. , Song M. K. , & Happ M. B. ( 2008 ). Conceptual challenges in the study of caregiver-care recipient relationships . Nursing Research , 57 ( 5 ), 367 – 372 . doi: 10.1097/01.NNR.0000313499.99851.0c 18794721 

  26. Lloyd B. T. , & Stirling C. ( 2011 ). Ambiguous gain: Uncertain benefits of service use for dementia carers . Sociology of Health & Illness , 33 ( 6 ), 899 – 913 . doi: 10.1111/j.1467-9566.2010.01332.x 21371052 

  27. McDonnell E. , & Ryan A. A. ( 2013 ). The experience of sons caring for a parent with dementia . Dementia . doi: 10.1177/1471301213485374 

  28. Morse J. M ( 1999 ). Qualitative generalizability . Qualitative Health Research , 9 ( 1 ), 5 - 6 . doi: 10.1177/104973299129121622 

  29. National Alliance for Caregiving and AARP Public Policy Institute ( 2015 ). Caregiving in the U.S. 2015 Report, 1–87 . Retrieved from http://www.caregiving.org/wp-content/uploads/2015/05/2015_CaregivingintheUS_Final-Report-June-4_WEB.pdf 

  30. National Opinion Research Center ( 2014 ). Report: long-term care in America: Expectations and reality . The Associated Press for Public Affairs Research and National Opinion Research Center . Retrieved from http://longtermcarepoll.org/Pages/Polls/Report.aspx 

  31. Navaie M. ( 2011 ). Accessibility of caregiver education and support programs: Reaching hard-to-reach caregivers In Toseland R. W. , Haigler D. H. , & Monahan D. J. (Eds.), Education and support programs for caregivers (pp. 13 – 28 ). New York, NY : Springer New York . doi: 10.1007/978-1-4419-8031-1_2 

  32. Nolan M. , Ingram P. , & Watson R. ( 2002 ). Working with family carers of people with dementia: “Negotiated” coping as an essential outcome . Dementia , 1 ( 1 ), 75 – 93 . doi: 10.1177/147130120200100104 

  33. Nolan M. R. , Davies S. , Brown J. , Keady J. , & Nolan J. ( 2004 ). Beyond “person-centred” care: A new vision for gerontological nursing . Journal of Clinical Nursing , 13 ( s1 ), 45 – 53 . doi: 10.1111/j.1365-2702.2004.00926.x 15028039 

  34. Pinquart M. , & Sörensen S. ( 2011 ). Spouses, adult children, and children-in-law as caregivers of older adults: A meta-analytic comparison . Psychology and Aging , 26 ( 1 ), 1 – 14 . doi: 10.1037/a0021863 21417538 

  35. Prince M. , Prina M. , & Guerchet M. ( 2013 ). World Alzheimer report 2013: Journey of caring . London : Alzheimer’s Disease International (ADI) . 

  36. Roth D. L. , Fredman L. , & Haley W. E. ( 2015 ). Informal caregiving and its impact on health: A reappraisal from population-based studies . The Gerontologist , 55 ( 2 ), 309 – 319 . doi: 10.1093/geront/gnu177 26035608 

  37. Singh P. , Hussain R. , Khan A. , Irwin L. , & Foskey R. ( 2014 ). Dementia care: Intersecting informal family care and formal care systems . Journal of Aging Research , 2014 ( 3 ), 1 – 9 . doi: 10.1155/2014/486521 

  38. Sinha M. ( 2013 ). Portrait of caregivers, 2012 . Statistics Canada . Retrieved from http://www.statcan.gc.ca/pub/89-652-x/89-652-x2013001-eng.pdf 

  39. Sinha S. K. , Griffin B. , Ringer T. , Reppas-Rindlisbacher C. , Stewart E. , Wong I. , ... Anderson G. ( 2016 ). An evidence-informed national seniors strategy for Canada ( 2nd ed., pp. 1 – 151 ). Toronto, ON: Alliance for a National Seniors Strategy . 

  40. Stuifbergen M. C. , & Van Delden J. J. M. ( 2010 ). Filial obligations to elderly parents: A duty to care? Medicine, Health Care and Philosophy , 14 ( 1 ), 63 – 71 . doi: 10.1007/s11019-010-9290-z 

  41. Szinovacz M. E. , & Davey A. ( 2007 ). Changes in adult child caregiver networks . The Gerontologist , 47 ( 3 ), 280 – 295 . doi: 10.1093/geront/47.3.280 17565093 

  42. Tracy S. J. ( 2010 ). Qualitative quality: Eight “Big-Tent” criteria for excellent qualitative research . Qualitative Inquiry , 16 ( 10 ), 837 – 851 . doi: 10.1177/1077800410383121 

  43. Vasunilashorn S. , Steinman B. A. , Liebig P. S. , & Pynoos J. ( 2012 ). Aging in place: Evolution of a research topic whose time has come . Journal of Aging Research , (2012 ( 2 ), 1 – 6 . doi: 10.1155/2012/120952 

  44. Ward-Griffin C. , Hall J. , DeForge R. , St-Amant O. , McWilliam C. , Oudshoorn A. , … Klosek M. ( 2012 ). Dementia home care resources: How are we managing? Journal of Aging Research , 2012 ( 2 ), 1 – 11 . doi: 10.1155/2012/590724 

관련 콘텐츠

오픈액세스(OA) 유형

GOLD

오픈액세스 학술지에 출판된 논문

이 논문과 함께 이용한 콘텐츠

저작권 관리 안내
섹션별 컨텐츠 바로가기

AI-Helper ※ AI-Helper는 오픈소스 모델을 사용합니다.

AI-Helper 아이콘
AI-Helper
안녕하세요, AI-Helper입니다. 좌측 "선택된 텍스트"에서 텍스트를 선택하여 요약, 번역, 용어설명을 실행하세요.
※ AI-Helper는 부적절한 답변을 할 수 있습니다.

선택된 텍스트

맨위로