[논문]Family resources study: part 1: family resources, family function and caregiver strain in childhood cancer

Panganiban-Corales, Avegeille T; Medina Jr, Manuel F

doi:10.1186/1447-056X-10-14

Family resources study: part 1: family resources, family function and caregiver strain in childhood cancer 원문보기

Asia Pacific family medicine, v.10 no.1, 2011년, pp.14 - 14

Panganiban-Corales, Avegeille T (Department of Family and Community Medicine University of the Philippines-Philippine General Hospital Taft Avenue, Ermita, Manila Philippines) , Medina Jr, Manuel F (Department of Family and Community Medicine University of the Philippines-Philippine General Hospital Taft Avenue, Ermita, Manila Philippines)

Abstract ▼ AI-Helper

BackgroundSevere illness can disrupt family life, cause family dysfunction, strain resources, and cause caregiver burden. The family's ability to cope with crises depends on their resources. This study sought to assess families of children with cancer in terms of family function-dysfunction, family caregiver strain and the adequacy of family resources using a new family resources assessment instrument.MethodsThis is a cross-sectional study involving 90 Filipino family caregivers of children undergoing cancer treatment. This used a self-administered questionnaire composed of a new 12-item family resources questionnaire (SCREEM-RES) based on the SCREEM method of analysis, Family APGAR to assess family function-dysfunction; and Modified Caregiver Strain Index to assess strain in caring for the patient.ResultsMore than half of families were either moderately or severely dysfunctional. Close to half of caregivers were either predisposed to strain or experienced severe strain, majority disclosed that their families have inadequate economic resources; many also report inaccessibility to medical help in the community and insufficient educational resources to understand and care for their patients. Resources most often reported as adequate were: family's faith and religion; help from within the family and from health providers. SCREEM-RES showed to be reliable with Cronbach's alpha of 0.80. There is good inter-item correlation between items in each domain: 0.24-0.70. Internal consistency reliability for each domain was also good: 0.40-0.92. Using 2-point scoring system, Cronbach's alpha were slightly lower: full scale (0.70) and for each domain 0.26-.82. Results showed evidence of association between family resources and family function based on the family APGAR but none between family resources and caregiver strain and between family function and caregiver strain.ConclusionMany Filipino families of children with cancer have inadequate resources, especially economic; and are moderately or severely dysfunctional. Many caregivers are predisposed to caregiver strain or are already experiencing severe strain. To provide appropriate care for these families, physicians should regularly assess family function, resources and strain experienced by caregivers. The SCREEM-RES questionnaire used in this study is a helpful and reliable instrument to assess adequacy of family resources.

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참고문헌 (29)

Ngelangel and Wang Cancer and the Philippine Cancer Control Program Japanese Journal of Clinical Oncology 2002 32 S52 S61 10.1093/jjco/hye126 11959878

상세보기
Barakat LP Marmer PL Schwartz LA Quality of life of adolescents with cancer: Family risks and resources Health and Quality of Life Outcomes 2010 8 63 10.1186/1477-7525-8-63 20584303

상세보기
Morris J Blount R Cohen L Frank N Madan-Swain A Brown 'Family Functioning and Behavioral Adjustment in Children With Leukemia and Their Healthy Peers' Children's Health Care 1997 26 2 61-75 22069773
Vrijmoet-Wiersma CMJ van Klink J Kolk A Koopman H Ball Lynne Egeler R Assessment of Parental Psychological Stress in Pediatric Cancer: A Review Journal of Pediatric Psychology 2008 33 7 694 706 10.1093/jpepsy/jsn007 18287109

상세보기
Smilkstein G The Family APGAR: A Proposal for a Family Function Test and Its Use by Physicians The Journal of Family Practice 1978 6 6 1231 1239 660126

상세보기
Grootenhuis MA Last BF Adjustment and coping by parents of children with cancer: A review of the literature Support Care Cancer 1997 5 466 484 10.1007/s005200050116 9406361

상세보기
Kazak A Cant MC Jensen M McSherry M Rourke M Hwang WT Alderfer M Beele D Simms S Lange B Identifying psychosocial risk indicative of subsequent resource utilization in families of newly diagnosed pediatric oncology patients Journal of Clinical Oncology 2003 21 3220 3225 10.1200/JCO.2003.12.156 12947055

상세보기
Kazak A Prusak A McSherry M Simms S Beele D Rourke M Alderfer M Lange B The psychosocial assessment tool (PAT): Pilot data on a brief screening instrument for identifying high-risk families in pediatric oncology Families, Systems and Health 2001 19 3 303 317
Stuber ML Kazak AE Meeske K Barakat L Is posttraumatic stress a viable model for understanding responses to childhood cancer? Child and Adolescent Psychiatric Clinics of North America 1998 7 1 169 182 9894086

상세보기
Manne S Miller D Meyers P Wollner N Steinherz P Redd W Depressive symptoms among parents of newly diagnosed children with cancer: A 6-month follow-up study Child Health Care 1996 25 191 209 10.1207/s15326888chc2503_3

상세보기
Sloper P Predictors of distress in parents of children with cancer: a prospective study J Pediatr Psychol 2000 25 79 91 10.1093/jpepsy/25.2.79 10820946

상세보기
Beck AR Lopes MH Caregiver Role Strain in Caregivers of Children with Cancer Rev Bras Sept-Oct 2007 60 5 513 8
Smilkstein G The cycle of family function. A conceptual model for family medicine Journal of Family Practice 1980 11 223 32 7411049

상세보기
Burns N Grove S The Practice of Nursing Research: Conduct, Critique, and Utilization 2005 Elsevier and Saunders
Pineda A Bugayong R, Pineda A Tools for family assessment PAFP Proceedings of the Orientation Course in Family Medicine 1999 Makati City: Philippine Academy of Family Physicians 36 50
Bautista MT Yu-Maglonzo EI Modified Caregiver Strain Index The Filipino Family Physician 2007 45 1 1 7
Bautista MT Yu-Maglonzo EI Pilares-Cruz MV Modified Caregiver Strain Index Presented at the Department of Family Medicine, University of Santo Tomas Residents' Annual Research Forum 1997 Manila, UST
Hill R Families under stress 1949 New York: Harper and Row
Hill R Generic features of families under stress Social Casework 1958 49 139 150
National Statistics Office Family Income and Expenditures Survey 2000 Manila. NSO
Martini R Helping children cope with chronic illness Americal Academy of Child and Adolescent Psychiatry http://www.aacap.org Last accessed Nov, 2010
Dockerty JD Williams SM McGee R Skegg DC Impact of childhood cancer on the mental health of parents Med Pediatr Oncol 2000 35 475 483 10.1002/1096-911X(20001101)35:5 3.0.CO;2-U 11070480

상세보기
Han HR Korean mothers' psychosocial adjustment to their children's cancer J Adv Nurs 2003 44 499 506 10.1046/j.0309-2402.2003.02833.x 14651698

상세보기
Magni G Silvestro A Carli M de Leo D Social support and psychological distress of parents of children with acute lymphocytic leukaemia Br J Med Psychol 1986 59 383 385 10.1111/j.2044-8341.1986.tb02708.x 3467789

상세보기
Hoekstra-Weebers JE Jaspers JP Kamps WA Klip EC Psychological adaptation and social support of parents of pediatric cancer patients: a prospective longitudinal study J Pediatr Psychol 2001 26 225 235 10.1093/jpepsy/26.4.225 11329482

상세보기
Hoekstra-Weebers JE Jaspers JP Klip EC Risk factors for psychological maladjustment of parents of children with cancer J Am Acad Child Adolesc Psych 1999 38 1526 1535 10.1097/00004583-199912000-00014

상세보기
Young B Dixon-Woods M Findlay M Heney D Parenting in a crisis: conceptualizing mothers of children with cancer Soc Sci Med 2002 55 10 1835 47 10.1016/S0277-9536(01)00318-5 12383468

상세보기
Kim Y Given BA Quality of life of family caregivers of cancer survivors. Cancer 2008 112 S11 2556 2568
Hagedoorn M Sanderman R Bolks HN Tuinstra J Coyne JC Distress in couples coping with cancer: A meta-analysis and critical review of role and gender effects Psychological Bulletin 2008 134 1

상세보기

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Family resources study: part 1: family resources, family function and caregiver strain in childhood cancer 원문보기

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