[논문]Oncologist Perspectives on Rare Cancer Care: A Nationwide Survey

Shin, Dong Wook; Cho, Juhee; Yang, Hyung Kook; Kim, So Young; Lee, Su Hyun; Suh, Beomseok; Shin, Hee-Young; Lee, Hyun Joo; Kim, Dae Ghon; Park, Jong Hyock

doi:10.4143/crt.2014.086

Oncologist Perspectives on Rare Cancer Care: A Nationwide Survey 원문보기

Cancer research and treatment : official journal of Korean Cancer Association, v.47 no.4, 2015년, pp.591 - 599

Shin, Dong Wook (Department of Family Medicine & Health Promotion Center, Seoul National University Hospital, Seoul, Korea) , Cho, Juhee (Department of Health, Behavior and Society & Epidemiology, Johns Hopkins Bloomberg School of Public Health, Baltimore, MD, USA) , Yang, Hyung Kook (Division of Cancer Policy and Management, National Cancer Control Institute, National Cancer Center, Goyang, Korea) , Kim, So Young (Division of Cancer Policy and Management, National Cancer Control Institute, National Cancer Center, Goyang, Korea) , Lee, Su Hyun (Department of Hemato-Oncology, Yonsei Cancer Center, Severance Hospital, Seoul, Korea) , Suh, Beomseok (Department of Family Medicine & Health Promotion Center, Seoul National University Hospital, Seoul, Korea) , Shin, Hee-Young (Department of Biomedical Science, Chonnam National University Medical School and Clinical Trial Center, Chonnam National University Hospital, Gwangju, Korea Korea<) , Lee, Hyun Joo , Kim, Dae Ghon , Park, Jong Hyock

Abstract ▼ AI-Helper

PurposeIn response to the challenges and difficulties imposed by rare cancers, multi-stakeholder initiatives dedicated to improving rare cancer care was launched, and several recommendations were made by professional societies. However, these primarily reflect the view of the advocates and supporters, and may not represent the views of the “average” clinician or researcher. In this study, we sought to investigate perceived difficulties with regard to rare cancer care and potential solutions endorsed by oncologists.Materials and MethodsA representative sample of 420 oncologists recruited in 13 cancer centers participated in a nationwide survey.ResultsOncologists faced various difficulties in treatment of patients with rare cancers, including the lack of clinical practice guidelines (65.7%) and personal experience (65.2%), lack of approved treatment options (39.8%), and reimbursement issues (44.5%). They were generally supportive of recent recommendations by multi-stakeholder initiatives as well as professional societies for development of clear clinical practice guidelines (66.0%), flexible reimbursement guidelines (52.9%), and a national rare cancer registry (47.4%). However, there was only moderate endorsement for referrals to high-volume centers (35.5%) and encouragement of off-label treatments (21.0%).ConclusionInsights into the general attitudes of oncologists gained through our nationwide survey of representative samples would be helpful in development of clinical practices and public health policies in rare cancer treatment and research.

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참고문헌 (25)

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Oncologist Perspectives on Rare Cancer Care: A Nationwide Survey 원문보기

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