목적: 본 연구는 말기아동 간호에 대한 교육자를 위한 교육프로그램인 ELNEC-PPC에 참여한 간호사의 소아청소년 호스피스완화의료(PPC)에 대한 지식 및 태도를 확인하기 위하여 수행되었다. 방법: 2012년 ELNEC-PPC 교육자를 위한 교육과정에 등록한 간호사 중 연구참여에 동의하고 서명날인 후 설문조사에 응답한 총 196명의 자료를 분석하였으며, 소아청소년 호스피스완화의료에 대한 지식과 태도는 20문항의 7점 척도로 측정하였다. 결과: 학력수준과 소아과병동 및 호스피스 근무경험에 따라 PPC에 대한 지식 정도에 차이가 있었다. 소아과 근무경험, PPC 경력 및 교육경험 이수 정도에 따라 소아 호스피스완화의료 태도에 차이가 있었으며, 기혼 간호사는 자녀의 완화의료서비스 결정에 대한 보호자의 권리에 대해 더 긍정적이었으며, 석사 이상군은 PPC에 대한 지식과 태도 정도가 높았다. 결론: PPC에 대한 간호사의 지식 및 태도를 높이기 위해서는 일반간호사를 대상으로 하여 표준화된 교육이 필요하다.
Purpose: The aim of this research was to explore nurses' knowledge of and attitudes toward pediatric palliative care (PPC) in Korea. Methods: A descriptive cross-sectional design was used. A total of 196 participants were recruited from the ELNEC-PPC course held in Seoul, Korea. All participants completed a 20-item survey questionnaire which assessed knowledge of and attitudes toward PPC using a 7-point Likert scale. Results: Nurses' knowledge of PPC correlated with their educational level and work experience in the pediatric unit and hospice care unit. The work experience in the pediatric unit, career length in PPC and completion of palliative education course made differences in the attitudes toward PPC. Married nurses scored significantly higher on the parental rights in determining palliative care service for their child, and nurses with master's degree or higher showed a higher level of understanding of and attitudes toward the differences between PPC and adult palliative care. Conclusion: The factors influencing nurses' knowledge of and attitudes toward PPC need be considered to develop a pediatric palliative training program.
Kim BH, Choe SO, Chung BY, Yoo YS, Kim HS, Kang KA, et al. Job analysis for role identification for general hospice palliative nurse. Korean J Hosp Palliat Care 2010;13:13-23.
Sumner L. Pediatric hospice and palliative care. In: Ferrell BR, Coyle N. Oxford textbook of palliative nursing. 3rd ed. New York:Oxford University Press;2010. p.997-1017.
Contro NA, Larson J, Scofield S, Sourkes B, Cohen HJ. Hospital staff and family perspectives regarding quality of pediatric palliative care. Pediatrics 2004;114:1248-52.
Morstad Boldt A, Yusuf F, Himelstein BP. Perceptions of the term pediatric palliative care. J Palliat Med 2006;9:1128-36.
Himelstein BP, Hilden JM, Boldt AM, Weissman D. Pediatric palliative care. N Engl J Med 2004;350:1752-62.
World Health Organization. WHO definition of palliative care [Internet]. Geneva: World Health Organization; 2008. [cited 2011 Aug 23]. Available from: http://www.who.int/cancer/ alliative/definition/en/.
American Academy of Hospice and Palliative Medicine. Definition of palliative care [Internet]. Chicago, IL: American Academy of Hospice and Palliative Medicine; 2008. [cited 2011 Aug 22]. Available from: http:/www.aahpm.org/positions/definition.html.
Hinds PS, Burghen EA, Pritchard M. Conducting end-of-life studies in pediatric oncology. West J Nurs Rese 2007;9:448-65.
Lange JW, Shea J, Grossman SC, Wallace M, Ferrell BR. Validation of the end-of-life nursing education consortium knowledge assessment test : an abbreviated version. J Hosp Palliat Nurs 2009;11:284-90.
Haut CM, Michael M, Moloney-Harmon P. Implementing a program to improve pediatric and pediatric ICU nurses' knowledge of and attitudes toward palliative care. J Hosp Palliat Nurs 2012;14:71-9.
Docherty SL, Miles MS, Brandon D. Searching for "the dying point:" providers' experiences with palliative care in pediatric acute care. Pediatr Nurs 2007;33:335-41.
Norman GR1, Shannon SI, Marrin ML. The need for needs assessment in continuing medical education. BMJ 2004;328:999-1001.
Jones BL, Sampson M, Greathouse J, Legett S, Higgerson RA, Christie L. Comfort and confidence levels of health care professionals providing palliative care in the intensive care unit. J Soc Work End Life Palliat Care 2007;3:39-58.
Davies B, Sehring SA, Partridge JC, Cooper BA, Hughes A, Philp JC, et al. Barriers to palliative care for children perceptions of pediatric health care providers. Pediatrics 2008;121:282-8.
Limbo R, Kobler K. The tie that binds: relationships in perinatal bereavement. MCN Am J Matern Child Nurs 2010;35:316-21.
Thrane S, Jones B. Communication with families after the death of a child: a pilot study. J Hosp Palliat Nurs 2012;14:6-10.
Jin J, Limbo R, Davies B. Grief and bereavement in pediatric palliative care. In: Ferrell BR, Coyle N. Oxford textbook of palliative nursing. 3rd ed. New York:Oxford University Press; 2010. p.1081-3.
Medellin G, Hellsten MB. Symptom management in pediatric palliative care. In: Ferrell BR, Coyle N. Oxford textbook of palliative nursing. 3rd ed. New York:Oxford University Press; 2010. p.985-7.
Sakae M, Goldstein ML. Pediatric pain: Knowing the child before you. In: Ferrell BR, Coyle N. Oxford textbook of palliative nursing. 3rd ed. New York:Oxford University Press;2010. p.1100-15.
Zhukovsky D, Robert R. Pediatric palliative care. In: Bruera E, Yennurajalingam S. Oxford American handbook of hospice and palliative medicine. New York:Oxford University Press;2011. p.345-7.
Watson M, Lucas C, Hoy A, Wells J. Oxford handbook of palliative care. 2nd ed. New York:Oxford University Press;2009. p.532-5.
이 논문을 인용한 문헌 (1)
Yu, Juyoun ; Bang, Kyung-Sook 2015. "Pediatric Nurses' Perception and Knowledge about Pediatric Hospice Palliative Care" 한국호스피스·완화의료학회지 = Korean journal of hospice and palliative care, 18(3): 235~244