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NTIS 바로가기성인간호학회지 = Korean Journal of Adult Nursing, v.27 no.3, 2015년, pp.283 - 293
김동원 (동아대학교 간호학과) , 배은숙 (동의대학교 간호학과)
Purpose: Depression is a common sign of suffering among the patients with Parkinson's disease (PD). Frequent and severe neuropsychiatric symptoms lead to high levels of distress in patients and their caregivers, which results in the high levels of caregiver burden. The aim of this study was to deter...
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핵심어 | 질문 | 논문에서 추출한 답변 |
---|---|---|
부양부담이란 무엇인가? | 파킨슨병은 부양자에 대한 일상생활 의존이 특징인 진행성 신경퇴행성 장애로 파킨슨병 환자의 부양자에게 많은 부담을 갖게 한다. 부양부담은 부양자의 건강, 사회생활, 또는 경제적 상황에 영향을 주는 정도로 부양자에 의해서 경험되는 주관적 해석을 나타내는 심리사회적 개념이다[2]. 파킨슨병은 파킨슨병 환자의 부양자들에게 광범위한 부정적 영향을 미치며, 많은 요소들이 부양자 삶의 질과 부담에 상당한 관련이 있는 것으로 나타났다. | |
부양부담은 어떠한 문제들과 연결되는가? | 파킨슨병은 파킨슨병 환자의 부양자들에게 광범위한 부정적 영향을 미치며, 많은 요소들이 부양자 삶의 질과 부담에 상당한 관련이 있는 것으로 나타났다. 부양부담은 건강 문제, 습관의 변경, 경제적 손실 및 삶의 질 악화와 같이 부양 역할에 뒤따르는 다양한 문제들과 관련된다[3]. 부양자 역할은 삶의 질 뿐 아니라 다른 요인들과 더불어 직접적이고 부정적인 결과로써 부양부담에 영향을 미치기 때문에 직접적인 부양자 결과를 평가하여 부양부담을 감소할 필요성이 제기된다. | |
파킨슨병 환자의 주부양자들은 누구인가? | 파킨슨병 환자의 부양자들이 경험하는 부양부담은 일반적인 만성 질환 환자의 부양자보다 더 높은 것으로 보고되었으며[4], 이것은 병의 진행적이고 오랫동안 지속되는 특징으로 인하여 높은 부양부담을 경험하기 때문이었다[5]. 주부양자는 대개 가족구성원으로써[6-8] 부모, 형제, 자식 관계로 배우자 (88.9%), 성인자녀(5.9%)가 많다[9]. 병의 진행에 따라 환자를 부양하는 것은 중요한 역할이지만 대부분의 파킨슨병 환자에 대한 감정적, 실제적인 부양은 배우자같은 비전문가인 부양자에 의해서 제공되고 있다[3,10]. |
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