[논문]국내 갈락토스혈증 아동의 식행동 및 영양섭취 실태에 관한 연구

서혜지; 정예승; 김유리; 오지은

doi:10.7318/kjfc/2022.37.4.363

국내 갈락토스혈증 아동의 식행동 및 영양섭취 실태에 관한 연구
A Study on the Dietary Behaviors and Nutritional Statuses of Children with Galactosemia in Korea 원문보기

韓國食生活文化學會誌 = Journal of the Korean Society of Food Culture, v.37 no.4, 2022년, pp.363 - 375

서혜지 (이화여자대학교 식품영양학과) , 정예승 (이화여자대학교 식품영양학과) , 김유리 (이화여자대학교 식품영양학과) , 오지은 (이화여자대학교 신산업융합대학)

Abstract ▼ AI-Helper

Galactosemia is a rare, hereditary metabolic disorder caused by the accumulation of galactose and its metabolites in the body due to a lack of enzymes that convert galactose to glucose. This study aimed to investigate the dietary behaviors and nutritional statuses of patients with galactosemia and to provide basic information on the development of nutrition education programs to improve quality of dietary life. A survey was conducted on 13 parents of (<11 years of age) children with galactosemia and 26 parents of (<11 years of age) children without galactosemia. Mean body mass index was greater for school-age children with galactosemia (18.77 kg/m2) than for corresponding normal children (16.55 kg/m2). Underweight and obesity rates of children with galactosemia were greater than those of children without galactosemia. In addition, children with galactosemia had a higher food neophobia rate and thus consumed less food. Normal children exhibited a greater range of food preferences than those with galactosemia, especially for milk and dairy products (p= .001) and fats and sweets (p= .04). Reliable food databases and appropriate dietary recommendations are required to ensure the proper growth of children with galactosemia.

주제어

표/그림 (9)

표 General characteristics of the participants
표 General characteristics of the participants (c0ntinued)
표 Comparison of nutritional status between children with and without galactosemia
표 Comparison of Food neophobia, Health Related Quality of Life, and Food literacy between children with and without galactosemia
표 Comparison of preference for food groups between children with and without galactosemia
표 Awareness and Needs of nutrition education in subjects with or without galactosemia
표 Nutrient intake in subjects with or without galactosemia
표 Food frequency in subjects with or without galactosemia
표 Correlation analysis of NQ, FNS, and HRQoL of children¹⁾

참고문헌 (32)

Berry GT, Moate PJ, Reynolds RA, Yager CT, Ning C, Boston RC, Segal S. 2004. The Rate of De Novo Galactose Synthesis in Patients with Galactose-1-Phosphate Uridyltransferase Deficiency. Mol. Genet. Metab., 81(1):22-30

상세보기
Boo MN, Cho SK, Park K. 2015. Evaluation of dietary behavior and nutritional status of elementary school students in Jeju using nutrition quotient. J. Nutr. Health, 48(4): 335-340

원문보기 상세보기
Bosch AM, Grootenhuis MA, Bakker HD, Heijmans HS, Wijburg FA, Last BF. 2004. Living with classical galactosemia: health-related quality of life consequences. Pediatr., 113(5):423-428
Dovey TM, Staples PA, Gibson EL, Halford JC. 2008. Food Neophobia and 'picky/Fussy'eating in Children: A Review. Appetite, 50(2-3):181-193

상세보기
Evans S, Daly A, Chahal S, MacDonald J, MacDonald A. 2016. Food Acceptance and Neophobia in Children with Phenylketonuria: A Prospective Controlled Study. J. Hum. Nutr. Diet., 29(4):427-433

상세보기
Fekkes M, Theunissen N, Brugman E, Veen S, Verrips E, Koopman HM, Vogels T, Wit JM, Verloove-Vanhorick SP. 2000. Development and Psychometric Evaluation of the TAPQOL: A Health-Related Quality of Life Instrument for 1-5-Year-Old Children. Qual. Life. Res., 9(8):961-972
Hermans ME, Welsink-Karssies MM, Bosch AM, Oostrom KJ, Geurtsen GJ. 2019. Cognitive functioning in patients with classical galactosemia: A systematic review. Orphanet J. Rare. Dis., 14(1):1-11
Jeon EY. 2020. Home Meal Replacement Purchase attitude depending on Visual Information of Package Design Using Food Neophobia Scale. Master's degree thesis, Ewha Womans University, Korea, pp 5-103
Jung YH, Kim JH. 2016. Evaluation of Nutrition Quotient and Related Factors in Preschool Children. Korean J. Community Nutr., 21(1):1-11
Kim JH, Yun SH, Hwang SS, Shim JO, Chae HW, Lee YJ, Lee JH, Kim SC, Lim DH, Yang SW. 2018. The 2017 Korean National Growth Charts for Children and Adolescents: Development, Improvement, and Prospects. Korean J. Pediatr., 61(5):135

원문보기 상세보기
Kim SY, Cha SM. 2020. Evaluation of dietary behavior and investigation of the affecting factors among preschoolers in Busan and Gyeongnam area using nutrition quotient for preschoolers (NQ-P). J. Nutr. Health., 53(6):596-612

원문보기 상세보기
Lambert C, Boneh A. 2004. The Impact of Galactosaemia on Quality of life-A Pilot Study. J. Inherit. Metab. Dis., 27(5):601-608

상세보기
Lee DH. 2006. Newborn Screening of Inherited Metabolic Disease in Korea. Clin. Exp. Pediatr., 49(11):1125-1139
Lee HJ, Kim JH, Song SJ. 2019. Assessment of dietary behaviors among preschoolers in Daejeon: using Nutrition Quotient for Preschoolers (NQ-P). J. Nutr. Health., 52(2):194-205.

원문보기 상세보기
Lee JS, Hwang JY, Kwon SH, Chung HR, Kwak DK, Kang MH, Choi YS, Kim HY. 2020a. Development of nutrition quotient for elementary school children to evaluate dietary quality and eating behaviors. J. Nutr. Health., 53(6):629-647

원문보기 상세보기
Lee JS, Kang MH, Kwak DK, Chung HR, Kwon SH, Kim HY, Hwang JY, Choi YS. 2016. Development of nutrition quotient for Korean preschoolers (NQ-P): Item selection and validation of factor structure. J. Nutr. Health., 49(5):378-394

원문보기 상세보기
Lee SH, Park TS, Han YO. 2020b. Relationship Between Attraction of Physical Activity and Health-Related Fitness in Elementary School Children. Korean J. Growth. Dev., 28(3):349-356

상세보기
Lim SJ, Seo HJ, Kim YR, Oh JE. 2022. Perception and Demand of Primary Caregivers and Clinical Experts for the Dietary Management of Children with Galactosemia in Korea. J. Korean Soc. Food Cult., 37(2):143-152
Na YS. 2021. Development of a Tool for Food Literary Assessment for Young Adults: Findings from a Korean Validation Study. Doctoral degree thesis, Ewha Womans University, Korea, pp 19-192
Park HJ. 2020. A Study on the Dietary Behavior and Food Group Preference and the Parents' Nutrition Education Needs of Children with Autism Spectrum Disorder. Master's degree thesis, Ewha Womans University, Korea, pp 6-120
Park IS, Cho HJ, Lee DH, Song JH. 2003. Galactosemia Detected by Neonatal Screening Test. Clin. Exp. Pediatr., 46(5):440-446
Park SY, Kim DI, Lee DH. 2008. A Cost-Benefit Analysis of Neonatal Screening Tests for Maple Syrup Urine Disease, Homocystinuria, Galactosemia, and Congenital Adrenal Hyperplasia. . Genet. Med., 5(2):111-118
Pliner P, Hobden K. 1992. Development of a Scale to Measure the Trait of Food Neophobia in Humans. Appetite, 19(2):105-120

상세보기
Schadewaldt P, Kamalanathan L, Hammen H, Wendel U. 2004. Age Dependence of Endogenous Galactose Formation in Q188R Homozygous Galactosemic Patients. Mol. Genet. Metab., 81(1):31-44

상세보기
Sohn YB. 2015. A Diagnostic Algorithm of Newborn Screening for Galactosemia. J. Korean Soc. Inherit. Metab. Dis., 15(3):101-109
Timson DJ. 2019. Type IV Galactosemia. Genet. Med., 21(6):1283-1285

상세보기
Verrips EG, Vogels TG, Koopman HM, Theunissen NC, Kamphuis RP, Fekkes M, Wit JM, Vanhorick SPV. 1999. Measuring Health-Related Quality of Life in a Child Population. Eur. J. Public Health, 9(3):188-193

상세보기
Vidgen HA, Gallegos D. 2014. Defining Food Literacy and its Components. Appetite, 76:50-59.

상세보기
Vogels T, Koopman HM, Verrips G, Zwinderman K, Verloove-Vanhorick SP, Wit JM. 1998. The Proxy Problem: Child Report Versus Parent Report in Health-Related Quality of Life Research. Qual. Life Res., 7(5):387-397

상세보기
Yoo HL, Jo EB, Kim KR, Park SH. 2021. Defining Food Literacy and its Application to Nutrition Interventions: A Scoping Review. Korean J. Community Nutr., 26(2):77-92
Yu SW, Gang MH, Lee YW, Chang MY, Levy HL, Kim SZ. 2020. Galactosemia: A Korean Patient and Literature Review. J. Korean Soc. Inherit. Metab. Dis., 20(1):14-23
Minisry of Education. 2020. Sample Statistics for Student Health Examinations in 2019 https://www.moe.go.kr/boardCnts/view.do?boardID316&boardSeq81807&lev0&m0302#, [accessed 2022.08.10]

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