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CHNR : Child health nursing research, v.22 no.4, 2016년, pp.247 - 256
임승화 (서울대학교 간호대학) , 이명선 (서울대학교 간호대학.간호과학 연구소)
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Purpose: The purpose of the study was to identify and describe the caregiving difficulties that mothers of children with spina bifida experience from their own perspectives. Methods: A qualitative descriptive study was designed. Data were collected from five mini-focus group interviews and four indi...
| 핵심어 | 질문 | 논문에서 추출한 답변 |
|---|---|---|
| 이분(二分)척추(spina bifida) 또는 척추갈림증이란? | 이분(二分)척추(spina bifida) 또는 척추갈림증은, 임신 4주에 신경관결손으로 척수를 덮는 척추궁의 형성에 결함이 생겨 장애를 유발하는, 난치성 질병이다[1]. 1970년대 이전까지는 이 질환으로 인해 유발되는 심각한 인지장애와 신체장애 때문에 의료진이나 부모가 치료를 거부하거나 포기하는 경우가 많았고, 환아는 뇌수종, 요로감염, 신기능 저하로 대부분 조기 사망하였다[2]. | |
| 이분척추증이 만성질환으로 전환된 이유는? | 그러나 1970년대 이후부터 의학의 발달로 단락술(shunt)과 청결간헐적도뇨, 방광확대수술 등이 보편화되면서, 조기 사망이 크게 줄었다[3]. 최근에는 이분척추 환아의 74-80% 이상이 성인기까지 생존하기 때문에 평생 관리가 필요한 만성질환으로 전환되었다[3-5]. 질환의 중증도는 이분척추의 종류와 크기, 병변의 위치에 따라 달라진다[4]. | |
| 척추갈림증에 대해 조기 사망이 줄어든 계기는? | 1970년대 이전까지는 이 질환으로 인해 유발되는 심각한 인지장애와 신체장애 때문에 의료진이나 부모가 치료를 거부하거나 포기하는 경우가 많았고, 환아는 뇌수종, 요로감염, 신기능 저하로 대부분 조기 사망하였다[2]. 그러나 1970년대 이후부터 의학의 발달로 단락술(shunt)과 청결간헐적도뇨, 방광확대수술 등이 보편화되면서, 조기 사망이 크게 줄었다[3]. 최근에는 이분척추 환아의 74-80% 이상이 성인기까지 생존하기 때문에 평생 관리가 필요한 만성질환으로 전환되었다[3-5]. |
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