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NTIS 바로가기동서간호학연구지 = Journal of East-West nursing research, v.19 no.2, 2013년, pp.159 - 167
이혜진 (신흥대학교 간호학과)
Purpose: The purpose of the study is to develop and to evaluate a internet-based social support program for the mothers of congenitally abnormal children. The theoretical basis of the study is the moderating effect model of social support theory (Cobb, 1976). Methods: In first phase, an internet sup...
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핵심어 | 질문 | 논문에서 추출한 답변 |
---|---|---|
선천성 이상아란 무엇인가? | 선천성 이상아란 선천성 장애인 식도 폐쇄증(Oesophageal atresia), 장폐색(Diphragmatic hernia), 제대기저부 탈장(Omphalocele)과 OECD에 제출해야 하는 선천성 이상 4개 항인 큰혈관 전위(Transposition of great vessels), 사지 감소성 결손(limb reduction defects), 다운 증후군(Down’s syndrome), 척추 갈림증(Spina bifida)을 갖고 출생한 영아를 말한다(the Mother and Child Health Law, 2007). 이들은 흔히 장애를 초래하여 만성질환이 될 수 있고, 병원입원의 주요 이유이며, 영아사망의 주요 원인이기도 한 심각한 보건의료 문제이다(Hwang, 2000). | |
장애아 어머니는 어떠한 증상을 보이는가? | 이러한 선천성 이상아의 출생은 어머니와 가족에게는 스트레스를 유발하는 사건이며 가족체계 내에 심각한 문제를 일으킬 수 있는데 특히 일차적으로 아기를 돌보는 어머니에게 발생하는 문제가 가장 크다고 여러 연구에서 지적하였다. 국외의 논문에서 살펴보면 Grill과 Harris (1991)는 장애아 어머니는 우울증상을 많이 보인다고 하였으며, Fraley (1990)는 만성적 슬픔, 무력감, 좌절감, 분노, 비난, 두려움 등의 정서를 경험한다고 하였다. 결국 장애아를 돌보는 어머니는 높은 스트레스에 대처하지 못하고 부정적 정서를 갖게 되면서 자녀양육을 어렵게 느끼게 되고 이는 모성역할 획득에 지연을 주게 된다(Mercer, 1981). |
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